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We Need Your Help!

A survey is presently being conducted by a graduate student from Western Carolina University on transportation and epilepsy. Participants need to be 18 and above with at least a two year history of epilepsy. Information from this survey will be very helpful in assessing the transportation issues that people with epilepsy face in our state. If you would be interested in participating in this survey contact: Patricia Gibson at the Epilepsy Information Service at 1-800-642-0500 or

Privacy Policy


The Epilepsy Foundation of North Carolina (EFNC) respects the privacy of its members and other visitors to its website at and any other websites owned or controlled by EFNC from time to time as well as EFNC’s pages and applications on third-party social-networking services such as Facebook, LinkedIn or Twitter and our applications on mobile devices (collectively, the “Site”). We want you to know how we address privacy issues on the Site. EFNC provides this privacy policy (the “Privacy Policy”) to explain how your personal information will be treated by EFNC. EFNC reserves the right to amend this Privacy Policy at any time. Please check back frequently in order to see changes. Your use of the Site constitutes your acceptance of the Privacy Policy, as it may be amended from time to time. The Privacy Policy is a part of, and subject to, the Site’s Terms & Conditions. The Privacy Policy and the Terms & Conditions are legally binding on all users of the Site.

Unless otherwise stated in this Privacy Policy, any reference to “EFNC” in this Privacy Policy refers to The Epilepsy Foundation of North Carolina and all of its affiliated companies or organizations.

  1. Collection of Personal Information from Site Users
  1. EFNC may collect and/or track: (1) the home server domain names, e-mail addresses, type of computer, and type of Web browser of visitors to the Site; (2) the e-mail addresses of visitors that communicate with EFNC or the Site via e-mail; (3) information knowingly provided by the visitor in online order forms, registration forms and surveys, (including but not limited to name, address, e-mail and other personal profile data); and (4) aggregate and user-specific information regarding page views.
  2. EFNC may place Internet “cookies” on visitors’ hard drives. Internet cookies save data about individual visitors, such as the visitor’s name, password, username, screen preferences, the pages of a site viewed by the visitor, and the advertisements viewed or clicked by the visitor. When the visitor revisits the Site, EFNC may recognize the visitor by the Internet cookie and customize the visitor’s experience accordingly. Visitors may decline Internet cookies, if any, by using the appropriate features of their Web client software, if available; however, this may impair certain features of the Site.
  3. When a visitor performs a search within the Site, EFNC may record information identifying the visitor or linking the visitor to the search performed. EFNC may also record limited information associated with every search request made by the visitor and use that information to, among other things, solve technical problems with the service and to calculate overall usage statistics.
  1. Use of Personal Data Collected. EFNC may use personally identifiable information in a number of ways.  By way of example, EFNC may use personally identifiable information as follows:
  1. To communicate with you about your membership account, or to communicate information about the Site.
  2. To build higher quality, more useful services, such as by analyzing usage trends, and by measuring demographics and interests regarding specific areas of the Site.
  3. To provide you with prompt and effective customer service.
  4. To support the operation of the Site (such as account maintenance and record keeping), troubleshoot problems, resolve disputes, and to enforce our Terms & Conditions.
  5. To inform you about goods and services related to EFNC and developments in appropriate fields. You will have the option of opting out of such electronic communications by sending an e-mail to
  1. Disclosure of Personal Data Collected. EFNC may disclose personally identifiable information about you to third parties as follows:
  1. With your consent.
  2. To EFNC’s agents and advisors (such as our accountants or attorneys). We only disclose the personal information necessary for them to provide their services to you or to us, and only under strict confidentiality restrictions.
  3. As EFNC believes necessary to: (1) comply with applicable law (including court and government orders, subpoenas, and federal, state, and local laws, rules, and regulations); (2) enforce or apply EFNC’s Terms & Conditions and other agreements; or (3) protect the rights, property, or safety of EFNC, our users, or others.
  4. If you partake (or we reasonably suspect that you are partaking) in any illegal or potentially illegal activity. We may disclose personal information even without a subpoena, warrant, or other court order, to the extent we feel that doing so is necessary to inform and cooperate with applicable law enforcement agencies or other appropriate authorities.
  5. In aggregated form, i.e., information about multiple users collectively without identifying any individual user, such as the total number of visitors to a particular section in a given week.
  1. Collection of Personal Data from Children: The Site is not intended for use by people under the age of eighteen (18) (“Children”) without the prior consent and ongoing supervision of a parent or guardian. EFNC will not knowingly (a) collect or post information from Children without their parent’s or guardian’s consent, or (b) provide any personally identifying information collected from Children, regardless of its source, to any third party for any purpose whatsoever.
  1. Security Measures. For electronic commerce transactions conducted through the Site, EFNC has implemented certain security features to prevent the unauthorized release of or access to personal financial information. In particular, all financial transactions are conducted through a secure server. The secure server encrypts all financial information a visitor inputs before it is sent to EFNC.
  1. Third Party Websites. The Site may contain links to other Internet websites. Unless we explicitly state otherwise, we have no control over these third party sites and their privacy practices. This Privacy Policy applies only to information you supply (or that we collect) in connection with use of the Site. You should review third party privacy policies specific to the third party websites to which this Site provides links.
  1. Communication with Users; Opt-Outs. EFNC may contact users who have entered personal information in connection with the Site. You may “opt out” of receiving marketing and promotional emails by following the opt-out procedure described in each email EFNC sends. However, even if you opt out of receiving marketing and promotional emails, EFNC may continue to email you for administrative or informational purposes, including follow-up messages regarding any content you have submitted to the Site. EFNC does not and will not send you emails asking you to provide or confirm sensitive personal information. A technique known as “phishing” attempts to steal personal identity data and financial account credentials from consumers. “Phishers” use “spoofed” emails to lead consumers to sham websites which trick recipients into divulging personal information including credit card numbers, account usernames, passwords, and social security numbers. If you receive such an email communication purporting to be from EFNC, please forward it immediately to EFNC and then delete it from your computer.
  1. Security and Protection of Personal Information. EFNC maintains reasonable standards of security and confidentiality on the Site to protect against unauthorized disclosures, use, alteration, or destruction of the information, including personal information, you provide to the Site. EFNC limits access to the databases containing information, including personal information, to its key personnel. However, no security system is perfect, and we cannot guarantee that information you provide to us over the Internet will remain private.  We also cannot guarantee that information you provide to us over the Internet will not be intercepted.
  1. Notification of Changes. EFNC reserves the right, in its sole discretion, to change, modify, add, or remove portions of this Privacy Policy at any time by updating this posting without advance notice to you. Such revisions shall be effective on all of the users immediately upon posting. However, if at any point EFNC decides to use your personal information in a manner different from that stated at the time it was collected, EFNC will notify you and you will be given a choice as to whether EFNC may use this information in the new manner.
  1. Contact Information. If you have any questions regarding this Privacy Policy or you would like to review, change, and/or remove your personal information, you may contact us at:
    Epilepsy Foundation of North Carolina
    Piedmont One, Suite 5541 A
    1920 W. First Street
    Winston-Salem, NC 27104
    Telephone: (800) 451-0694
    Local: (336) 716-2320
  1. Effective Date. The Effective Date of this Privacy Policy is August 1, 2017.

Epilepsy Alliance North Carolina

Piedmont One, Suite 5541 A
1920 W. First Street
Winston-Salem, NC 27104

Telephone: (800) 451-0694
Local: (336) 716-2320
Fax: (336) 716-6018